The girl with 'glass bones'
Grace is a little girl surrounded by love. She has to be – because Grace has ‘glass bones’. That’s the term her school principal used to help Grace’s classmates understand her osteogenesis imperfecta, a genetic condition that makes her bones break under the slightest pressure – and it stuck.
When you donate to SickKids, you’re supporting the hospital that’s supported Grace her whole life. Which, for Grace, hasn’t been easy. Her parents, Liz and David, knew she had special needs when they adopted her, but it wasn’t until they got home, and to SickKids, that Grace’s condition was diagnosed. They couldn’t even pick her up at first, so they carried her on a duvet cover.
“I’ve lost track of how many fractures she’s had.”
When you meet Grace, the first thing you note is the sparkle in her eyes. “She loves to paint. She loves to play with Lego, and outdoors. She’s very much about nature,” says her mom. And she visits SickKids regularly – for treatment that helps her live her life, so that her spirit never breaks.
